2001 Conference Proceedings

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Reflections On Privacy Issues And Current Practice In AAC

Carole Krezman
Sarah Blackstone
Michael B. Williams, ACI
Jeff Higginbotham
University of New York at Buffalo

We are moving toward a time when technology is making it easier to collect, store and share information. This session focuses on some unanswered questions. Do we have the safeguards in place that will in fact, protect the rights of the augmented communicators and families who service providers and researchers are assessing, studying and reporting on?

We plan to raise and discuss important issues, especially those related to privacy, informed consent and the valid and reliable assessment of communication competence and performance in AAC. Discussants will encourage the expression of differing points of view and opinions from the audience.

During the session, presenters will briefly share background information from other fields about the area of performance measurement and related ethical issues. The major focus will be the rights of AAC consumers and legal issues of concern to researchers, clinicians, agencies and policy makers. We will also explore issues that relate to the validity and reliability of data that researchers and clinicians may collected and the potential uses (and misuses) of these data. Finally, we will describe the history of automated data logging and compare and contrast some specific tools and techniques that may have utility in the area of AAC.


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